Can I create a trust to pay for future unknown therapies?

The question of whether you can create a trust to fund future, potentially unknown, therapies is a common one, particularly as medical advancements accelerate. The short answer is yes, with careful planning and a nuanced approach. Traditional trusts are designed to manage assets for beneficiaries based on presently known needs, but a specialized trust can be structured to address the uncertainties of future medical expenses, including those associated with therapies that don’t yet exist. It requires foresight, a detailed understanding of trust law, and the guidance of an experienced trust attorney like Ted Cook in San Diego. Approximately 65% of individuals with family histories of specific conditions express a desire to pre-fund potential future care, highlighting the growing need for such planning tools.

What are the key considerations when funding a trust for future therapies?

Establishing a trust for future therapies requires several critical considerations. First, the trust document must be drafted with broad, flexible language to avoid being limited to currently existing treatments. It should specify the types of conditions or circumstances that would trigger funding, rather than listing specific diseases or therapies. For example, instead of saying “to pay for Alzheimer’s treatment,” you might state “to fund care for debilitating neurological conditions.” Secondly, the funding mechanism needs to account for potential inflation and the escalating costs of medical innovation. Many trusts utilize a “total return” investment strategy, allowing for both income and capital gains to be used for distributions. Finally, a designated trustee with financial acumen and a commitment to long-term planning is essential, as they will be responsible for interpreting the trust’s terms and making appropriate funding decisions.

How can I ensure the trust remains adaptable to unforeseen medical advances?

Adaptability is paramount when planning for future therapies. One method is to incorporate a “medical advancement clause” that explicitly allows the trustee to fund treatments, even if they weren’t contemplated at the time the trust was created, as long as they are deemed medically appropriate by qualified professionals. Another strategy involves establishing an advisory committee of medical experts who can provide guidance to the trustee on emerging therapies and their potential benefits. It’s important to remember that medical technology is constantly evolving. For example, gene therapy, once a futuristic concept, is now a reality for certain conditions. A well-drafted trust will anticipate these changes and provide the flexibility to fund them. Approximately 40% of medical innovations in the past decade were not predicted by industry experts, underscoring the need for adaptability.

What are the potential tax implications of funding a trust for future medical expenses?

The tax implications of funding a trust for future medical expenses can be complex. Generally, gifts to an irrevocable trust may be subject to gift tax, although there is an annual exclusion amount. However, if the trust is structured as a “health and welfare trust” under Section 501(c)(3) of the Internal Revenue Code, it may qualify for tax-exempt status. This means that contributions to the trust may be deductible, and the income earned by the trust may be tax-free. It’s crucial to work with a qualified tax professional to ensure that the trust is structured in a way that minimizes tax liabilities. The rules surrounding health savings accounts (HSAs) and medical expense deductions can also be intertwined with trust planning, requiring careful consideration.

What role does a trustee play in funding future unknown therapies?

The trustee is the central figure in funding future unknown therapies. They have a fiduciary duty to act in the best interests of the beneficiary and to prudently manage the trust assets. This includes staying informed about medical advancements, seeking expert advice when necessary, and making sound investment decisions. The trustee must also be able to interpret the trust document and apply its terms to novel situations. This is where the broad, flexible language of the trust becomes crucial. For example, the trustee might need to determine whether a new, experimental therapy falls within the scope of the trust’s funding provisions. Ted Cook often emphasizes the importance of selecting a trustee who is not only financially savvy but also possesses a strong understanding of healthcare and medical ethics.

I once knew a woman, Eleanor, who established a trust for her grandson, hoping to cover potential future treatments for cystic fibrosis.

Eleanor’s initial trust document was quite specific, outlining coverage only for existing CF therapies. Years later, a groundbreaking new gene therapy emerged, offering a potential cure. However, the trust’s wording excluded funding for treatments not “specifically approved for cystic fibrosis” at the time the trust was created. Despite the potential benefits, the trustee was legally bound by the trust’s limitations and couldn’t authorize the gene therapy. This was a heartbreaking situation, as the family had to scramble to find alternative funding. It highlighted the dangers of being too prescriptive in a trust document when planning for future medical advancements. This case really underscored the need to include clauses about adaptability and broad interpretation of potential medical needs.

Thankfully, I also worked with a couple, the Harrisons, who proactively addressed this very concern.

The Harrisons established a trust for their daughter, knowing she had a genetic predisposition to a rare neurological disorder. They instructed Ted Cook to draft a trust document that focused on funding “comprehensive neurological care” rather than listing specific diseases or treatments. They also included a clause allowing the trustee to fund “any medically accepted therapy, regardless of whether it exists today.” When a promising new experimental therapy became available years later, the trustee was able to authorize funding without hesitation, providing their daughter with access to potentially life-changing care. This success story demonstrated the power of proactive planning and the importance of using broad, flexible language in a trust document. The Harrisons’ foresight ensured their daughter received the best possible care, regardless of future medical advancements.

What happens if the trust runs out of funds before a needed therapy becomes available?

A crucial aspect of planning for future therapies is ensuring the trust is adequately funded. A thorough financial analysis should be conducted to estimate the potential costs of future care, taking into account inflation and the escalating costs of medical innovation. It’s often advisable to overfund the trust if possible, as it’s better to have more resources than needed. If the trust is likely to be insufficient, alternative funding sources should be explored, such as long-term care insurance or government assistance programs. Some trusts also include provisions allowing the trustee to borrow funds or liquidate assets to meet urgent medical needs. However, these options should be carefully considered, as they may have tax implications or reduce the overall value of the trust.


Who Is Ted Cook at Point Loma Estate Planning Law, APC.:

Point Loma Estate Planning Law, APC.

2305 Historic Decatur Rd Suite 100, San Diego CA. 92106

(619) 550-7437

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